Living with a nerve hunting disease – Kelowna News – Castanet.net

Living with a nerve hunting disease – Kelowna News – Castanet.net.

ENOUGH already

“The glitch I’d like to program out of my brain is chronic pain. Sometimes I picture the pain — soggy, moldy, dark or perhaps ashy, like those alarming pictures of smokers’ lungs. Wherever the pain is located, it must look awful by now, after a lifetime of dominating my brain.”

“I’d like to replace my forehead with a Plexiglas window, set up a camera and film my brain and (since this is my brain, I’m the director) redirect it. Cut. Those areas that are generating pain — cool it. Those areas that are supposed to be alleviating pain — hello? I need you! Down-regulate pain-perception circuitry, as scientists say. Up-regulate pain-modulation circuitry. Now.”

Another day @ Abby cancer clinic

Now before you go nuts thinking I have cancer again, let me explain.

A few months back I thought it would be great to get out into the community and do my part, so I got involved with the local cancer clinic. I am there from 8am-12pm ish most Wednesday mornings.

I get to hang out with the book cart raising funds for the cancer clinic and this morning I broke the record!! $53.00 – great day to say the least.

So that is my blurb for the day 🙂

Later folks – hot tub time.

HAPPY BIRTHDAY BABY!!

To the man of my dreams, my best buddy and my Psalm 1 man – this is for you – xoxoxoxoxoxo  ….

By: Shaila D Touchton

God made my husband and formed him with his own hands. Give my husband a understanding so that he can learn your commands. Grace and peace is with my husband from God our Father and the Lord Jesus Christ. . God will complete the good work He started in my husband. Steps of my husband are ordered by the Lord. Philippians 1:6, Psalm 119:73, Psalm 37:23, 1 Corinthians 1:3

My husband will rid himself of all such things as these: anger, rage, malice, slander, and filthy language from his lips. My husband will keep his tongue from evil and his lips from speaking lies. Because Lord, guards my husbands mouth and he watches over the door of my husbands lips. The LORD will keep my husband from all harm— he watches over my husband’s life and his coming and going both now and forevermore. Colossians 3:8. Psalm 121:7-8, Psalm 141:3… See More

God will Take away all my husbands sins and wipe away all of the evil things my husband has done.My husband is patient, kind, lovable. He is not rude or self seeking. My husband is a God’s temple and a a branch of Jesus Christ. My husband is the body of Christ and Satan has no power over my husband. He is the temple of the Holy Spirit and has been established, anointed and sealed by God. 2 Corinthians 1:21-22, Psalm 51:9, 1 Corinthians 3:16,1 Cor. 13:4-5, .1 Corinthians 3:16, John 15:5, Rom. 12:21

My husband will never divorces his wife Because he honors marriage . He left his father and mother and is united to his wife, and the two will become one flesh. He loves his wife as his own body, nourishing and cherishing her, even as Christ does the Church My husband will bring Gods glory through meeting his wife’s needs and he is kind and compassionate with his wife.1 Corinthians 7:10-11, Heb 13:4, Ephesians 5:25-32, Ephesians 4:32a.

My husband would not be deceived by the lusts and sins of the world. That he would put aside all filthiness and all wickedness and in humility receive the word of God, and he is doer of the word and not merely a hearer only .Gods goodness and love will follow my husband all the days of his life and he will live in the house of the Lord forever. My husband fears the LORD is to hate evil, hate pride and arrogance, evil behavior and perverse speech Ja. 1:14-16, 21-23, Psalm 23:6, Proverbs 8:13.

My husband will not exasperate his children; instead, bring them up in the training and instruction of the Lord. My husband is a good father who correctly disciplines, wisely trains, and gently loves his children. My husband will participate in the divine nature and escape the corruption in the world caused by evil desires. 2PE 1:4, Ephesians 6:4, Prov. 3:12, 23:24, 29:17

All those in my home will choose to serve the Lord. I would build my home on the wisdom of the Lord and is a place where my children learn about the Lord both in words and the actions they see modeled here. That my husband and I talk about the Lord and be faithful to pray as a family at all times. I and my husband would be a faithful keeper of the home and watch over the affairs of our household Jos. 24:15,Deut. 11:19, Ps. 78:4-7, Prov. 24:3-4, Prov. 31:27, Tit. 2:5.

My husband is set apart to serve God and is destined to live in victory and will prosper in all things and be in health, just as his soul prospers and God shall supply all his needs according to His riches in glory by Christ Jesus .He lives with his wife happily. My husband is instructed and taught by God in the way he should go; God is my husbands counselor. My husband does not walk in the counsel of the wicked or stand in the way of sinners or sit in the seat of mockers. Psalm 1:1, Romans 5:17, psalm35:27. Psalm 141:4, Proverbs 5:18, Psalm 32:8, 3John 2, Phil 4:19

My husband will learn to totally submit to God and actively resist Satan in all circumstances and he is safe, Because Jesus keeps him safe, the wicked one does not touch him.My husband is an example for the believers in speech, in life, in love, in faith and in purity. My husband delights in the law of the LORD, and on his law he meditates day and night. he Trusts in the LORD with all his heart and lean not on his own understanding .My husband has a good conscience and desire to live honorably and obedient, not conforming to the things of the flesh. Heb 13:18, 1Pet 1:14.Psalm1:2, Proverbs3:5 James 4:7, 1Jn 5:18

Article Source: http://www.articles.narrowisthepath.com

Febuary 4 2010

Hi there all!

It has now been 8 days since my last operation.

It was a abdominal rupture on my left side – this was 4 layers of muscles that ripped for the first time post op (malignant cancer L1-L3 spinal fusion) just after the operation in January 2005. I had it repaired the first time in March 2006 2 days after Hetty’s dad passed away.

Since then it had ripped some more :). So I asked for another consult with the former surgeon and he was not interested in fixing this on going problem. After a referral to Dr Todd @ Peace Arch Hospital I had it reapaired again with adding more mesh between the layers. Now I am recovering slowly at home with my favorite nurse and beloved wife :).

Saw our family dr today for a post op consult and things are progressing normally – can’t wait to be able to get back into my hot tub SOON while life on long-term disability continues.

Thanks for all your prayer 🙂

May your troubles be less. And nothing but happiness, come through your door. Happy New Year 2010!

Well another year is here!!

In the middle of December a need was brought to our attention. A little dog needed a foster home. He was found without food and water – he was starving and cold. It was pulling at the heat strings and with some reluctance we took  this little guy into our home. We have named him Bonezz ,he is a 1-year-old Shih Tzu & Poodle mix – great little dog with loads of spunk and personality. He gets along great with Rousillon and they have lots of play fights. The idea is to get him fattened up, potty trained, neutered and ready for his forever home. Bonezz will make a great family pet – he is very easy-going and super cute.

New years eve we spent at home relaxing – nothing new there. New years day friends came to visit and they brought Pizza – it was awesome guys – thanks!!

Michael is anticipating his next operation to fix a surgical rupture, to go through on at the end of this month. But first we have a wedding to attend – this is a very exciting time.

Thanks to all of you for the ongoing prayers and support and all the best blessings to each of you in this new year.

My Medical Team – As of September 2009

Dr D. Richardson – Langley BC – Family/General

Dr Zwimpher – Vancouver BC – Neurosurgery

Dr. Michael Boyd – Vancouver BC – Neurosurgery

Dr Robert D. Keyes – Vancouver BC – Neurology

Dr. Michelle Johnson – Vancouver BC – Endocrinology

Dr. John David Todd – White Rock BC  – General Sugergy 

 

Annual Cancer Screening

This has been done and sent back to the lab – we are praying for another year cancer free.

April, May, June and part of July 2009…….

As most of you know, Michael has 2 surgeries in the past 7 months. NF1 was removed from C2/C3 of the spine and NF1 was removed from the left clavicle.Post op went well but was pain full and tiring. On April1 2009 Michael was forced back to work by his LTD Insurance company and tired his best for 3 weeks. At this point it was clear that this was not the proper way or right time to return back work full time.

In the mean time LTD had cut him off of his disability income and he was struggling to get back on it – not a easy task. After numerous calls with RBC (LDT policy holders) and NUMEROUS Dr appointments and a self paid examination($300.00) from a OT, PT and KIN team – it was determined that he is to take more time off for recovery and that his disability is now officially permanent. After a few sleepless months we finally got his LTD disability reinstated.

We manged to survive with the help of church, family, friends and Yeshua!!!

M & H Martin

Heal me, O LORD, and I will be healed; save me and I will be saved, for you are the one I praise. Jeremiah 17:14 ~

We have a new addition to our family…..

after many years of enjoying cats in our home, the last one died about 3 months ago. We were deeply sadden by the loss. Shadow will be missed.

Now fast forward to June 28 2009, we had been looking for a new addition to the family. And started thinking about getting a dog this time around. Michael had been home on disability now since April 21 2009 and I was was only working part time. Michael wanted to wait at least a year before adding another pet to the family, but my heart was set on finding a Shih Tzu. Friends and family have this breed and we really enjoyed the spunk and personality ofr the breed.

I was looking daily on craigslist, kijjji and talking to family and friends about finding the perfect puppy. At the end of June I found 2 dogs that I wanted us to meet. The first one was very strange and could not bond with either of us nor would she listen to her master. I knew this was not the dog for us. We came back home and I went back online and found the cutest black and white 4 month old Shih Tzu and we arranged a meeting with the owner. Immediately there was a bond and we knew that this was going to the dog for us. After some negotiating and goofing off with the pup we brought him home with us. Michael named him Rousillon!! He is a joy and pleasure to have in the house and on the road with us.

Rousillon - Summer 2009

Rousillon - Summer 2009

This Sunday his previous owner and mom Zoe will be coming for dogie date (first one with his mom). Going to be interesting to see them connect and react. Rpusillon has been camping with us in June already and really enjoyed it very much.